Saturday, March 5, 2011

Bad POTS day, Good POTS day...

That's how the story goes. How my life is going.

One day is good, the next thirty, bad. And just when I thought I had it, had figured out the pattern of it all - good weather day, good POTS day, yeah! - a great weather day comes along and I can't catch my breath to save my life.

All. Day. Long.

Sucks. And here I was going to blog about the ups and downs (ha, who am I kidding. Just the downs) of having POTS, but the thing is: I can only seem to get on here on a good POTS day...and when will the next one be, I don't know.

What's a good/bad POTS day look like? Oye, do you really want to know?...

A Good POTS day looks like this:

I wake up and my heart rate is normal. I'm not soaked from sweating all night long, my head isn't foggy, I can think straight and when I get up, out of bed, I'm not dizzy, light headed, feel like I'm about pass out. I still take my beta blocker, still drink two glasses of water with 1/2 teaspoon salt before doing anything else (because I know this isn't going to last, this good feeling) and go about my day.

On a good POTS day, I can breathe. I can walk up the stairs without it feeling like I've just run a marathon. I can pick up my kids and give them kisses without having to catch my breath first. I can kiss my husband without having to catch my breath first. I can go to the mailbox or walk to the bus stop and not feel like I have to get inside ASAP and lay down for the next half hour because I've just taxed the shit out of myself. I can go out and do things and not have to end my day abruptly to go home, lay down and wonder if this is it. This is how I'm going to feel for the rest of my life.

What does a bad POTS day look like?...

I'll leave that for a bad POTS day. I don't want to think about it now. I'm having a 1/2, 1/2 day today which, in essence, is a good POTS day. Anything outside of a full on bad POTS day is a good day.

So, I'm just going to take a shower, spend some time with my kids, and possibly go out later today to use that gift card I've been itchin' to use. Want to get some new running pants and shirt since I AM going to get back into it. I am. I have to. Otherwise... I'll blog about that another time. I'm not thinking about the whole heart/exercise/POTS eradication thing right now.

Right now, I'm taking a shower. Vent. Shower. Move on.

One thing at a time.

2 comments:

  1. I had visited your website which was really good Pots

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  2. It is no secret that I have a very deep and personal relationship with God. I have pushed and resisted that relationship this past year through all the bullshit I have had to go through living with Herpes but once again, God is bigger than my stubbornness and broke through that outbreak cold sore and all I had Genital Herpes. For me personally, hearing over and over how I am not good enough has really invaded my mind in the worst way possible. I completely shut down and I was just waking up like is this how life going to end this temporary herpes outbreak “fuck everybody with herpes if you know what I mean” but let's be honest here...
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