Maybe On Second Thought...

So, I'm not so sure about the compression stockings... I seem to still feel the earth, move, under my feet. I feel the sky falling down, oh, tumbling down. And my heart's still tremblin'...

Like how I did that? ;)

Okay, okay. Back to the program...

They are tight, I'll give them that.

And a highly depressing PITA! (Pain In The Ass) to get on. 10 mintues, 5 minutes a leg to get the darn things on. And the same amount of time getting them off (okay, maybe only 2 mintues, but you HAVE to be careful not to snag them. They are sitll pantyhose...pantyhose on steriods maybe...but pantyhose still.)

This is day three and I might try them over the weekend - Might. I don't know. I still feel "odd" and not quite right, but in a whole new way, and I'm not sure I have the stamina to figure out how to function in a new odd, not quite right way.

I wish I had someone to talk to who was doing this same thing right now. I found a HUGE group of POTsie peeps on facebook, requested to join... but haven't heard from the group leader yet. Here's to hoping they aren't too tired or foggy to check for new comers, lol.

If you can't tell, I'm in a bit of a mood. I can't be all cheery and sunshine today. Maybe it's because it rained heavy this morning and promised to be a nice chilly day...but turned gross warm and muggy. And I'm in a sweater. And boots. And jeans. AND TIGHTS! Anyone got a fan?!

UGH...

I still feel wonky. That's the only word that ever seems to fit.

So should I continue to wear them? Tough it out for a week and see? Take them back? (I mean, they were $120!!!)...

I don't know what to do. I sure do wish I had a real life doctor who knew what they were doing and could help me. Steer me in the right direction.

Compression Stockings... Every POTies' Dream...

So, today I took another step toward what could potentially be a break-through therapy to help with my POTS!... then again, it could end up just like everything else: it works for a while and then stops working. Or worse. It makes things worse!

No, I’m not a downer (there is a better word that I’d rather use here, but it would probably take me all day to recall it.. oh, thank you POTS for killing my vocab…)

Jaded!

Jaded is what I was looking for, lol.

SO… No, I’m not jaded J.

I’m just realistic after 4 ½ years of trying everything to find that nothing works for long. I will list all the medications and therapies I’ve tried in the past. You’ll think I’m making it up (unless, of course, you’re a POTSie like me and in the same boat)

Today, I got fitted for compression stockings. Got a pair too.

Opaque beige.

Ooooh la la. Can’t wait to wear them tomorrow… I’m hoping my insurance comes back that they will pay for them. I’m not the sort of person to spend over $100 for a pair of panty-hose, LOL.

What are compression stockings, you ask? They are waist high TIGHT tights that will help your blood stay where it’s supposed to be – your brain, heart, lungs, gut – and stay away from where it’s not supposed to pool – your legs. Here’s to hoping they work some. I sure do miss singing. Standing. Walking. Doing all three at the same time.

To get the compression stockings, I had to have my neurologist fax in a prescription stating the weight (20-30mmHg) and my diagnosis (POTS/Dysautonomia).  I’ll post a pick of me in my new tighty-beigies tomorrow ;) Hope my boots come in the mail in time!

Oh, the boots. That’s what I do to feel good about going through medical procedures (or buying $100 panty hose)… I buy shoes.

Got to make lemonade somehow out of this sour POTS stuff…

;)

It's GLOBAL Dysautonomia Awareness Month! October 2012...

What do you know... it's GLOBAL Dysautonomia Awareness Month!

I totally didn't get the memo, lol...

Well, better late than never:

Here's post #1 ;)

A video sumerizing what POTS is and some helpful hints and tips for treatments...

NOTE: there is a % of POTSies (people with POTS) that do not respond to ANY medication. Or alternative therapy plan. This is a fact to keep in mind. Not putting out a downer to start off the awareness blog posts... just something that needs to be kept in mind.