So, today I took another step toward what could potentially be a break-through therapy to help with my POTS!... then again, it could end up just like everything else: it works for a while and then stops working. Or worse. It makes things worse!
No, I’m not a downer (there is a better word that I’d rather use here, but it would probably take me all day to recall it.. oh, thank you POTS for killing my vocab…)
Jaded!
Jaded is what I was looking for, lol.
SO… No, I’m not jaded J.
I’m just realistic after 4 ½ years of trying everything to find that nothing works for long. I will list all the medications and therapies I’ve tried in the past. You’ll think I’m making it up (unless, of course, you’re a POTSie like me and in the same boat)
Today, I got fitted for compression stockings. Got a pair too.
Opaque beige.
Ooooh la la. Can’t wait to wear them tomorrow… I’m hoping my insurance comes back that they will pay for them. I’m not the sort of person to spend over $100 for a pair of panty-hose, LOL.
What are compression stockings, you ask? They are waist high TIGHT tights that will help your blood stay where it’s supposed to be – your brain, heart, lungs, gut – and stay away from where it’s not supposed to pool – your legs. Here’s to hoping they work some. I sure do miss singing. Standing. Walking. Doing all three at the same time.
To get the compression stockings, I had to have my neurologist fax in a prescription stating the weight (20-30mmHg) and my diagnosis (POTS/Dysautonomia). I’ll post a pick of me in my new tighty-beigies tomorrow ;) Hope my boots come in the mail in time!
Oh, the boots. That’s what I do to feel good about going through medical procedures (or buying $100 panty hose)… I buy shoes.
Got to make lemonade somehow out of this sour POTS stuff…
;)
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